Psychologist Gloria Pino —very tall and very thin, like no one else in her family— lived in pain and with fatigue and a pounding heart. She consulted with many doctors, but none would arrive at an accurate diagnosis. Until one doctor took her time to study her medical history thoroughly. That was the day Gloria first heard about Marfan syndrome, a rare disease that affects one in five thousand people.
I was born in Maracaibo, where I studied psychology and practiced as a professor and a researcher until 2015, when I moved to Spain. Since 2010, I have dedicated part of my time to working with organizations that empower rare disease patients.
